7 comments

  1. Elizabeth says:

    OK, this is getting weird. We are also both redheads! Maybe redheads are more genetically prone to lymphedema? Haha.

    Say, I’d love to see an entry on your methods of care.

    Here’s what I’m doing currently:

    Lymphatic drainage massage one to two times a week. It’s expensive but it helps. Thank the medical/insurance fields for not recommending or covering this. So stupid.

    Compression stockings (thighhighs as I was recently told by my lymph massage specialist that kneehigh interferes with lymph nodes in the back of the knee), twice daily dose of the all-natural circulation supplement Zyflamend (really helps), TONS of water, low-sodium foods (I try anyway!) and very sensible, padded shoes.

    I recommend all these things.

    • GracefulLymphedema says:

      Oh, my hair does look red in that picture! Unfortunately, it’s actually blonde.

      And yes, yes! Working on some posts about what I do. My tools are very similar to yours. Very good!

  2. Pat says:

    Hi Grace!

    Oh, I so understand . . . When I was 25 years old, I went to a major research hospital to seek help for this swelling that was becoming increasingly difficult to get down. I told the doctor that both my mother and grandmother had swollen legs and that they’d been diagnosed with something called Milroy’s disease. The doctor had never heard of Milroy’s disease and I’d never heard of lymphedema. I just knew that the swelling was not responding to: elevating my legs, keeping my legs up on an ottoman, lying on my back with my legs up against the wall, support hose, drinking 8-10 glasses of water/day, extreme dieting and exercise, wrapping them in saran wrap–get the picture? So, the doctor who’d never heard of Milroy’s disease offered me a referral to the psychiatric institute associated with the hospital. Many years later, my journey led me to the word “lymphedema.” That’s how I found the National Lymphedema Network and finally found a therapist.

    Hold strong, Grace! There is a lot of research happening now, and I believe that there are breakthroughs upon us. We now have pumps, compression garments, and, depending on your region, certified therapists. Most importantly, stay in touch with other LE patients and stay informed.

    Cheers,
    Pat

  3. Xpandasox says:

    Hi Grace!

    I found your blog from the NLN site, and I would like to introduce you to Xpandasox®!

    Our company Xpandasox® manufactures socks that stretch to 24+ inches around the calf. We have many customers that have lipedema and lymphedema who have written to us to tell us how they love to wear Xpandasox® over their compression socks to add a bit of fashion to their legs. We would love for you to try them out for yourself and to help us spread the word about Xpandasox®.

    Please let me know how we can work together!

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